The Button and Identity

“An identity would seem to be arrived at by the way in which the person faces and uses his experience.” ~ James Baldwin Can a chronic illness like MS affect your identity? You betcha! You see, personal identity (our sense of self) tends not to be an unchanging concrete thing. It tends more to be a…

Never Say Never…

“The best way to find out if you can trust somebody is to trust them.”― Ernest Hemingway Have you ever found yourself saying “I am never going to …something, something …again!” And you really meant it? I found myself saying that about marriage and pursuing relationships, and that “never” sentiment was reinforced over the last…

Illness Stigma: A Funny Thing Happened to me on the Way Home…

Follow the path of the unsafe, independent thinker. Expose your ideas to the dangers of controversy. Speak your mind and fear less the label of ‘crackpot’ than the stigma of conformity. And on issues that seem important to you, stand up and be counted at any cost. ~ Chauncey Depew You know, it still shocks…

Riding the Emotional Roller Coaster!

I’m not afraid to write my feelings in songs. ~ Taylor Swift Thanks to adjustments in my seizure meds, I have been riding the emotional lability roller coaster lately (so to speak). Emotional lability – sounds…weird, right? Here is a dictionary definition: emotional lability – a condition of excessive emotional reactions and frequent mood changes.…

Life and Trust and the Ability to Fly

“I’m flying, Jack! ” ~ Rose De Witt Bukater This weekend marks the 100th anniversary of the sinking of the Titanic. Living in Halifax for this anniversary has been very interesting…larger than life in someways, and weirdly revealing in other ways. Revealing in that while something as epic as the Titanic exists, what it all…

Seeing Through the Loneliness

Remember we’re all in this alone. ~ Lily Tomlin Recently, someone asked me to write more about the loneliness that can come with living with a chronic illness. Whew – that’s a tough subject, eh? Loneliness is more of an emotional state consisting of a hollow emptiness and profound unhappiness. It is not a voluntary…

Recognising your Own Inner Strength through the Fear

“The journey of a thousand miles must begin with a single step.”  ~ Lao Tzu I often get alot of people asking and commenting to me “How? How do you find the strength to keep going? To keep fighting? I couldn’t do it…I just don’t have that kind of strength.” I am going to let…